Oh Brother

The Doodle is lucky to have such a mature, kind and dedicated big brother that loves him to pieces.

While it must be really hard to live in the shadow of a sibling with special needs, Jimmy takes it in stride. He loves the Doodle so much. We are fortunate that they both go to the same school; Jimmy in 4th grade and the Doodle in the Special Ed Day class. Most kids Jimmy's age might be embarrassed by and ignore their special brother if they saw them getting ready to board a short bus at their school. Not Jimmy. He greets his little brother with open arms and hugs. Sometimes during recess he and his friends will pop over to the Special Ed class just to check on the Doodle and say Hi. The other day our fabulous Nurse Lou Lou came home from school with Doodle and told me how cool she thought it was that Jimmy and his friends were so nice to the him. She was really surprised.

It makes me so happy to realize that we have raised a very sensitive and kind little 9 year old. So far so good. And, I love that they will always have each other. The best sound around our house is when they are playing together impromptu and I can hear the infectious giggles coming from the room. I love to hear Jimmy trying his best to teach the Doodle new things. He has such patience with him. The Doodle really looks up to Jimmy and his eyes light up when he sees him. I've said it before but my favorite time of the week is Saturday morning where I can lay and cuddle in bed and watch cartoons with BOTH of my boys.

The Boy in the Striped Pajamas

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The Doodle loves his rocking chair. It was the best $4.99 I've spent in a while. He likes to sit in our room and rock while he watches Wonder Pets and Dora the Explorer.

He's a tough kid to find things that interest him or that he likes. He'll obsess over one thing one day and then the next, GONE. He won't like it. I'm not sure what that's all about...maybe short term memory loss or more joys brought to you by Autism? He does it with everything, food included. The only thing he's been really consistent with is liking his carts. So for right now, he likes his rocking chair.

Coco

I have what you would call a love-hate relationship with our cat, Coco.
She's about a year 1/2 old and is what you might call a real tramp. I've always had a cat, one or many since I was around 15 years old. You take care of them, you love them and then they die.

After our last cat Kramer died a few years ago, we took a hiatus from cat rearing. Jimmy had been pestering me to get a dog or, ahem, a puppy. We actually considered it and tried out an 8 month old black lab from Craig's list. After knocking the Doodle down several times and pretty much destroying the house I decided Jim was right for the first time ever and we drove that puppy back to his rightful owners around 10:00 that same night. What the heck was I thinking?

The good news was since we gave it an honest try and it was miserable, Jimmy was in full agreement and finally off the Dog Thing.
Then came the Cat thing.

I agreed for a few reasons. One reason was because Jimmy was 8 and I thought it was time for him to have his very own pet, one that he picked out and that he could take responsibility for. It would be his job to take care of it. It would be a great life lesson for him. It would also teach him how to care about something besides himself. The other reason was because I actually missed having a silly little cat sleeping all day in weird places. And, everyone knows cats practically take care of themselves. So we got a cat. Jimmy picked her out and named her Coco. She was just a kitten and not even that cute as kitten standards go. How is it, we ened up with the one ugly kitten in the world? I thought all kittens were supposed to be cute.

After about two weeks and the newness wore off and got bigger and uglier, Jimmy kind of lost interest. And, in true kitten fashion, she was single paw-ingly destroying the house, the furniture, the screen doors. Our house smelled like a cat box. I wasn't too happy.

Then, before I even had a chance to get her fixed, the little whore went out and got herself knocked up. Ah jeeze, although I have to admit I was a little bit excited at the idea of having an entire litter of kittens to play with.

But, Coco wasn't a fit mother. She kept wanting to abandon her kittens, there were four. She kept trying to hide them in weird places and wanted to go back outside to get away from them. We finally had to lock them all in the bathroom upstairs, Coco included. This is when she really went nuts. She was certifiable and hated those kittens. And she didn't care who knew it. All she did was scratch to get out and cry and scream. She was making our already stressful environment with the Doodle even more stressful. I had Jim shaking his head at me with that "I told you so" pursed lip and raised eyebrow thing he does. And what could I say? He was right. Again. Two times now.
It was very mysterious how she went suddenly missing for a few days on two different occasions...then my conscious would kick in and she would magically be right back home...where she belonged.
Sigh.

After 6 weeks of living with a psychotic cat and her obnoxiously cute kittens, (the house really smelled like cat box) we gave her kittens away. You would think this would have made her happy but no, all she could think about was getting back in the saddle again if you know what I mean. She immediately went into heat and was howling and howling to her little Tom Cats outside. We did our best to keep her in until we could get her fixed but she was too fast and crazy for us. With all that was going on with the Doodle and his autism and seizures, it was just too much. At this point I was despising her. I've never not liked one of my own pets before.

Short story longer--we got her fixed. And, after she finally forgave us she has been a much more loving, mellow and not such a freak show of a cat to be around. I'm actually liking her. There, I said it. The other night she was missing for about 24 hours which was very odd for her and I was actually missing the little Tramp. I made Jim drive around the vineyard in the dark while we called her and we searched with a flashlight. I thought for sure she was eaten by something or maybe hit by a car.

She came home the next day but was kind of sick and lethargic. I thought she might have been hit by a car or had eaten some poison. I actually thought she might die which made me really sad. I couldn't picture our family without her. Although it took some time for me to warm up to her, she was now an important part of our family even if I do curse her when she scratches on our screen doors. But, for all the damage she had done and irritation she has caused, she has always been really gentle with the Doodle. It's like she knows he's special. It's sweet the way she lays on the bed with him almost protecting him and has endured some serious Doodle abuse over the last year and a half. Coco has redeemed herself as our pet of choice and if the day comes when we get approved for a seizure dog, I've decided I'm going to make Jim break the news to her.

Running


Life moves fast. When I'm not physically running around, I have things running through my mind at warp-speed. It's hard to quiet my brain which must be the reason I am completely incapable of meditation. Of course this "running thing" is a metaphor because otherwise that would mean exercise for me and I do not actually run. I've tried to run before and it hurts. I think I waited too long to become a jogger. The bigger you get, the more uncomfortable it is. So I stopped doing that and now I just walk really fast.

But Jimmy loves to run. And good for him. He's young and long and lean. And the Doodle, well he can shuffle-sprint around. He looks like he might be running but he doesn't bend his knees or push off with the balls of his flat little feet so it looks like a really fast Penguin trying to get somewhere in a hurry. I should really put a sample on Youtube.

I've been sitting here thinking about all of the things I have to do and deadlines to meet and appointments to keep. There is work, school, family and the house. Fall is a crazy busy time...we have Halloween, Jimmy's Birthday, Thanksgiving, Back to School, my holiday boutique and then before you know it, it's Christmas and New Years. For years I have been just eeeking by, getting things done; finishing things and crossing things off my rhetorical To Do List.

It's like raking leaves in autumn.

I've been so busy for so long that I've been putting my spirituality on the back burner of my life. When do I have time for spirituality? I feel like my days run together and I don't have time to stop, breathe, empty and have grace. Except now "my life" is no longer just my life...it is now Our Lives since I have a family to consider.

Although, with all that has been happening in our lives with the Doodle's health, I feel it has brought me closer to God. At least now I am in conversation with Him daily. I've been searching for answers and there have been so many amazing people there for me. Praying for me. Praying for the Doodle. Praying for US. Thank you for your generosity.

Along with what has been happening with the Doodle, I think about the rest of my family and especially Jimmy and feeling bad for what kind of role model I must be to not go to church regularly. I never wanted to be a hypocrite and just go to be going or out of obligation or guilt; even though I Believe. I never wanted to be sitting there in church pouring over my To Do list in my head or thinking about what to make for dinner or wondering if I needed an oil change. I wanted to be fully present and didn't feel like I would be and I always felt that He might consider that just as bad as not going at all. I was always so busy, running. So I stayed home and hid behind my hectic life.

Now I have a family. I am older. I have different values and beliefs and I know that I must make the time and set the example. If not now, when? I bought a Christian cd and I have it in my car. I've been listening to it every day and really trying to hear the words. My dear friend Lisa sent me the links today to some wonderful and profound children's songs from Primary. They are absolutely beautiful. And touching. And if I close my eyes, I can see Jimmy or even the Doodle standing and singing these songs. I know what you're thinking, listening to the music isn't the same as worshiping or going to church and neither is going to a Church rummage sale...but these are my babysteps right now.

The real question buried in all this text might be to ask myself what have I been running from all of these years?

I have a Bible but haven't found the courage to pick it up and begin reading it. Honestly, it's the most intimidating book I have ever seen and I don't know where to start. I guess the beginning is always a good place to start.

Going to church. Reading the Bible. A stronger relationship with Jesus. These are all on my new To Do List.

OUR FALL

Looking forward to the changing of the season and all that it brings. Here are some things I can't wait for...
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Warm Socks
A Roaring Fire
Jimmy's 10th Birthday
Halloween Trick or Treating
Yummy Chocolate Chip Cookies
A Bare and Quiet Vineyard
Spooky Full Moons
Baking Homemade Bread
Our Annual Trip to Yosemite
A Day at the Pumpkin Patch
Carving Scary Pumpkins
Hot Cocoa with Marshmallows
A Happy, Seizure Free Doodle Bug





Nothing But Love

Are you ready?
I'm going to blow you a kiss now.
And, what might just seem like I'm pushing my cheeks together is really a kiss and I'm blowing it to you.
And I don't mess around, I use both hands for kiss blowing.
Did you see that? Did you catch it?
You must be quick as a whip. No blinking or you might miss it.
Now, I'm going to do it again.
This is my sign for MORE. Or maybe put up your dukes.
And, Mommy, if I could talk the first thing I would tell you is that I love you too.

Sometimes

Sometimes a mom needs...

To wash down some of that stay-at-home guilt with a perfectly blended Pineapple Drop.And some masterfully toasted Vanilla Bean Creme Brule with fresh berries.
And a big hug from someone you trust.
And to talk. Girl talk. With no screaming kids.
And the very good company of a dear old friend.

Thank you Michelle, it was just what I needed.

Social Skills


Over the last few months, five to be exact, we have stopped doing things and going places because of the Doodle's seizures. Along with the seizures, the behavior became an issue too. This has directly been reflective of our (mine and the Doodle's) social skills or lack there of. I find that we turn down invitations to go most places. It's hard even going to the park or birthday parties; things I would have gladly done before. I should clarify, I haven't been turning down invitations solely due to the autism and behavior of the Doodle, although always a factor. More so, I was worried about the seizures and how to keep him safe and not being able to put him down was hard. It's also hard to have, or pretend to have, a good time when you're exhausted, worried and depressed. I would work all day and deal with all of the Doodle's therapy appointments that come to the house...speech, OT, PT, and SHAPE that when it came time to be off "work", I would want to just relax and not have to be anywhere or do anything or see anybody.

The seizures weren't my excuse but rather my reason.

Mastering social skills can be a challenge for some, especially autistic people. It's hard to take an autistic child somewhere for obvious reasons but then I noticed, I started to like not going places. Am I becoming an introvert? Lazy? Could some of the autism be rubbing of on me? I noticed my list of friends began to dwindle. The invitations stopped coming. Most of my interaction with friends would be at arms length on facebook or email. I had nothing to talk about except recapping seizures in between sobbing.

So, I began to look on the bright side of not going places. I didn't have to worry about child care or what to wear. I didn't have to pretend to have fun. I didn't have to make small talk. I could save money. And then I found that when I would venture out and go somewhere "childless" most of my time would be spent worrying and wondering about the Doodle or feeling guilty for leaving in the first place.

So, it started getting easier and easier to not go.

I work from home so most days I don't ever leave the house; is this a blessing or a curse? Which leads me to the point of this long, drawn out post...We had real live visitors today! The Doodle had a little afternoon playdate and I got to visit face-to-face with one of my real live adult friends! We went for a walk and hung out and it made me remember how much I enjoy and have been missing my friendships. I hope my social skills weren't too rusty.

The Doodle is doing so much better with the seizures these days that there is no more excuses. I need to get back on the bicycle of friendship I seem to have fallen off of and set a better social example for my kids.

Bennie and the Jets

The Doodle has been walking around the house babbling a little bit. No more actual words since last Friday but he's doing a "bub-bub-bub" that's pretty darn cute. I think it makes the screaming a little easier to tolerate when he breaks it up with some "bub-bubs".He put these Elton glasses on tonight and with the "bub-bubs" it made me think of this song...

"Bub-Bub-Bub-Bub Bennie and the Jets".
Now if I can just find him some electric boots and a mohair suit we'd be set.

I could never understand the words to this song. It came out in 1974 when I was just six. For YEARS I've been singing them wrong so I just googled the lyrics. You will be amazed Bloggies at what this Cat is actually saying and I'm still scratching my head at what he's singing about:

Hey kids, shake it loose together
The spotlight's hitting something
That's been known to change the weather
We'll kill the fatted calf tonight
So stick around
You're gonna hear electric music
Solid walls of sound
chorus
Say, Candy and Ronnie, have you seen them yet
But they're so spaced out, B-B-B-Bennie and the Jets
Oh but they're weird and they're wonderful
Oh Bennie she's really keen
She's got electric boots a mohair suit
You know I read it in a magazine
B-B-B-Bennie and the Jets
Hey kids, plug into the faithless
Maybe they're blinded
But Bennie makes them ageless
We shall survive, let us take ourselves along
Where we fight our parents out in the streets
To find who's right and who's wrong


So now that I've disturbed you with Elton's lyrics I might mention that I refinished a dining room table I've had sitting in the garage for four years. It was in pieces and terrible condition. I couldn't give it away at our last garage sale. So when I say refinish, I'm using that term loosely. I slapped some black paint on it and hit it with the sander. Instant shabby chic. Go ahead kids, color on it, scrape it, scratch it. It just doesn't matter. The more rustic the better. I put it in our kitchen area, like a breakfast nook. I got tired of sitting at the bar, side by side, with our family to eat dinner. It felt a little disconnected. We have a formal dining room but the table is too long, it doesn't feel cozy in there either. We only eat in there on special occasions. So tonight we broke bread (I love saying that) at the round shabby table and it was really nice and Jim actually kicked it off with the saying of Grace and we had a collaborative meeting and will take turns saying it each night. Our new family tradition. Jimmy and Doodle Bug love it. We're going to eat dinner here as much as possible, I just need some chairs...and we're going to turn the tv off at dinner and be a family damn it. I don't know why I didn't think of this sooner.

A Silly Little Thing Called a Hamper


Oh the joy of having boys. I should clarify, the joy of having a nine year old and a husband who refuses to pick up their laundry.

Evidently, I am wearing an invisible sign that says, "Drop your laundry here and I would love to pick it up for you because I have nothing better to do today".

Hampers are completely lost on them. The Doodle loves to put things in things so I know I will never have a problem with him putting his dirty laundry in the hamper. I've actually found some pretty interesting things in the hamper besides dirty clothes that the Doodle has placed in there. Maybe the other two could stand to learn a thing or two from the Doodle.

Sigh.

Sunday


Today was about a lot of nothing. It was nice to have a day off and not have to be anywhere. No appointments. No school. No work. No errands. The only time I left the house today was to bring Jim a spare set of his keys because Jimmy locked the keys in the truck. I didn't even put a bra on. I have a bit of a love/hate relationship with Sundays because while I am happy to have the day off, most of my day is ruined thinking about all I have to do at work on Monday(s).

I had the edges bound on the carpet that was donated to us from Conklin brothers. It's actually really nice carpet. Carpet I would have totally picked out myself. Today's big project was figuring out where I was going to strategically place them over the Doodle traffic areas in the house since our floor is almost all tile. This required forethought, a little math and the moving of furniture. It also required 16 rolls of double stick tape. These carpets are now very stuck to the tile and I would have to consider them semi-permanent and not in the most attractive way. But they serve a very important function and purpose, to help keep the Doodle Bug safe. Or rather, safer if and when he has a seizure.Speaking of seizures, he has been almost seizure free. He had a small head-drop a week ago Thursday and he had a staring type of seizure at school on Friday. But besides those, the seizure have seemed to back way off. Yay.

So today was pretty boring really. I took a nap and worked on a few painting projects I've been wanting to get to. Oh, and I cannot forget that tonight was garbage night where we spend our quality family time. Exciting stuff so I applaud your tenacity if you're still reading this....If you're lucky, maybe tomorrow I can tell you about our exciting morning yesterday spent at the Saturday Sutter Heath clinic so that Jimmy could get his knee checked out. Really bad directions and 2 1/2 hours with a Doodle in a nonchild friendly waiting room with an aquarium is not a good thing. Nor was my argument with the stupid nurse who wanted me to leave the autistic epileptic toddler in the waiting room alone. Throw in the stinkiest poopy pants the Doodle could muster and I think we will now have to find a new doctor.


Wide Open

Can you believe this is my husband? Pretty good for a 52 year old! He's getting some serious air.

All three of my boys have a common thread and connection. They all love riding dirt bikes. It's something Jim has been doing most of his life and has naturally passed along to his boys.
Jimmy has been riding since he was four, three actually if you count the little battery operated quad he used to ride. And he seems to love the sport just as much as his dad or because of his dad. It's a huge bonding thing with them. They go on overnight trips to the dirt bike track and stay in the motorhome. When they're not riding, they're talking about riding and watching races. They also love going to the super cross and national races and watching the big guys ride. These are memories Jimmy will have forever about being with his dad in this way.
Jimmy just got a new Honda CR85 and is doing really great on it. They go riding at different tracks each weekend and Jimmy is riding on the big track now. Kind of scary. But also pretty cool and exciting.

It amazes me how much Jimmy looks up to his dad. He really is his hero.

And the Doodle Bug loves riding on the little 50 with his dad too. He's completely got the throttle action down, he rolls it on and off gently like a true rider might. And, he's already wearing a helmet so what the hay.


As a mom, it completely freaks me out. It's hard for me, I'm torn because they have this incredible bond together and enjoy it but it's such a dangerous sport that I can't help but worry. I'm always asking them why can't they take up something like Golf? Or Chess? And, yet I would never want them to stop doing something they love to do; especially when it means they are together.

He Has Spoken!


Today the Doodle said his very first real word. Kind of.
He already says a form of Hi or Hiya or Hey when he sees you but today he said a very distinct and purposeful "STOP" while he was doing his sign for stop...You can only imagine my delight and excitement when I recieved the text message from his nurse Lou Lou. She said it was very clear and that she wasn't imagining it because the other teachers in the class heard him say it. They all clapped and cheered and praised him.
It does seem like he's been making more and more sounds, he has a very cute "teeech-teeeech-teeech" he says and he does a "buahhhh".
I'm so happy that maybe there is hope for a talking Doodle Bug. I've always wondered what his little voice might sound like when he wasn't screaming for something. We've never known how this would play out whether or not he would be nonverbal his whole life or if he was just taking his time. Jimmy was a very late talker and didn't talk until 2 1/2 or 3 years. The difference is, Jimmy was a babbling fool making all kinds of sounds and trying to talk, whereas the Doodle is vowel sounds only--he's the strong silent type.
I wouldn't even care if he spoke Dora the Explorer at this point. Bring on the Hola and Vamonos and Azul! I'm just glad his first word wasn't a swear word:)

When all else fails

and you can't find the cat,

check in the back pack.

And you can't find the cell phone,
check in the toilet.

And you can't get the Doodle Bug to stop turning the channels on the TV set,
build a contraption (and hide the remotes).

P.S. Any one know how to get color crayon off a flat screen?
Sigh.

Dommy's Visitor




Dommy had a visit today from one of his favorite people in the whole world. Betsy! She brought some beads for him to play with and he couldn't have been happier. Of course I had to take some pictures and in answer to your question: No, I never wash his face.

You Know You're a Mom When...


You plan your day according to when Blues Clues is on.
You have signed important papers before with color crayon, Midnight Blue to be exact.
You’re Spanish is getting quite good thanks to Dora and Diego.
You consider sitting in traffic alone, “me time”.
You find Cheerios in the weirdest places.
You know which part of your shirt to wipe a nose with and have no one the wiser.
Vomit does not phase you.
You have no problem smelling your child’s butt to see if he’s poopy.
You actually use the word poopy.
You take your child’s shoes off once you get into the store rather than have to hunt for them later.
Your car keys have something very sticky all over them.
You know all the words to Goodnight Moon by heart.
You actually like to eat Goldfish as a grown up snack.
You curse people if they call during naptime.
You now refer to your own mother as Grammy.
You feel a sense of accomplishment to have put a bra on for the day.
You have dried spit up and/or snot on the shoulder of your sweater and frankly, you don’t really care.
You keep your favorite baby sitter’s number a secret from fellow moms.
Going to the grocery store alone is equivalent to a luxurious spa vacation.
You consider parenting to be the best job in the world.

How about you? Have any to add of your own?

Words Cannot Describe...

but this program and website does a great job of it:

Wordle: doodle bug

http://www.wordle.net/

Simply type in words or names that mean something to you and you can create your own word art. Once you type in all the words you want to be in your graphic, you hit GO and then you can view different colorschemes and layouts by customizing your art or selecting randomize.

So fabulous and so perfect for scrapbooking!

Sunday Refelections


T O D A Y

Outside my window...I’m watching the rain delicately water the garden and the vineyard.

I am thinking... about what I could have possibly done to pull a muscle in my thigh since I am allergic to exercising and that could not possibly be the cause of my muscle discomfort.

I am thankful for...kisses and hugs from a family that loves me and for four completely uninterrupted hours to myself today to go junking. Thanks Lou Lou.

In my kitchen... I have a pot of homemade spaghetti sauce on simmer for dinner.

I am wearing...MY usual: sweat pants, tee shirt, sweatshirt and a ball cap.
I am creating...a beautiful new framed piece of art from my junking excursion this weekend.

I am going...to start chipping away at the aforementioned to do list which includes planning Jimmy's 10th birthday party.

I am reading...”Simple Abundance, A daybook of Comfort and Joy” by Sarah Ban Breathnach. It's not making me much more joyful.

I am hoping...the Doodle Bug’s seizures are finally under control either by medication or prayers, blessing and the grace of God. Maybe all of the above.

I am hearing...The Doodle play with his Blue's Clues House while rocking in his rocking chair giggling at something which I have no idea about.

Around the house...are piles of folded laundry that need to be put away, bins of Jimmy’s hand-me-downs to go into storage for the Doodle, a sink full of dirty dishes, a garbage that needs to be emptied, an unusually absent cat who is not coming when I call her, a plastic ice cream cone floating in the toilet, 9 half empty water bottles and a poopy diaper on our porch to welcome guests.

One of my favorite things... the smell of cookies baking in our warm and cozy home on this rainy fall Sunday to be shared with my cute family.

My plans for the rest of the week...a Monday morning conference call, work, work and more work, to tackle some of my to do list and a Parent/Teacher conference with Mrs. Carter on Thursday afternoon.

The Ghost in the Machine
















I'm a scrapbooker and ironically, all these pictures you see of the Doodle and our family, I am taking; therefore I am not in them. It's a rarity for me to get a picture taken with the kids.

I have these visions of my children when they are full grown with children of their own and I am no longer on this earth, looking through old family albums trying to remember what their mom might have looked like. Or why all the pictures with me in them are make-shiftily taken lopsided with my left arm outreached and my head cocked just so in order to fit my face in the frame of the picture I'm snapping while the Doodle Bug reaches his hand out for the camera.

Hmph.

Today's self portrait with the Doodle didn't go so well. It's hard to get a good picture when he won't cooperate, look at the camera or cease the raspberries.

But I tried. And, at least it tells a story of their mom the ghost.

Generous Hearts

Yesterday I was face to face with a man with a Giant Heart. My mom's friend Wayne from Conklin Brothers had heard about the Doodle's seizures and our struggle with what to do with our tile floor in an effort to keep the Doodle safe. Since the future of the Doodle's seizure disorder is so unclear, whether or not we will be successful at getting the seizures under control, we are in a Catch 22 whether or not to completely carpet over the tile...

The Doodle is pretty contained to only our few carpeted rooms in our house. He loves, more than anything, to run around but when he's having multiple unforcasted seizures it's too dangerous for when he falls. If at some point the Doodle is to have to go into a wheel chair or walker then carpet won't be a good thing either and we would have to rip it all out.


Decisions.


So, Wayne at Conklin Brothers was nice enough to donate some large pieces of carpet to our family. I'm having the pieces bound and we will put them in the Doodle traffic areas of our house so that he can run around a little more.



Thanks Wayne. Giving us this carpet was a true act of kindness and generosity. Love, the Doodle and his family.

The Doodle's First Day Riding the Bus



Just click on the arrow in the middle to play slideshow. Sorry but you'll need to turn the sound off on the slideshow otherwise you're going to hear two songs at once.

The Language of God

By Mattie J.T. Stepanek



Do you know what

Language God speaks?

God speaks Every-Language.

That's because God made

Everyone and gave

Everyone different languages.

And, God understands all of them.

And, do you know what is God's

Favorite language?

God's favorite language is

Not grown-up's language,

But the Language of Children.

that's because children are special to God.

Children know how to share,

And they never lose

Their Heartsongs.


I have this book and I read it to feel better. It is my ONE go-to book that makes me laugh and cry and helps me put things into perspective.

It's easy to read therapy for the heart and soul.

This book is filled with incredibly inspirational and beautiful poetry written my a little boy in a wheel chair with Muscular Dystrophy, Mattie J.T. Stepanek. I first saw him on Oprah and was completely mesmerized by his outlook and wisdom considering all he had been through. He was wise and kind beyond his years.

I've been thinking about God a lot these days and searching. Searching for answers and guidance, I keep waiting for a bell to go off or bright light to shine upon me to understand what my purpose is here and to make sense of why this is happening to the Doodle.

Today the Doodle received an official Blessing. And I am hoping and praying and believing with every fiber of my being. I have to.

I can't imagine what Mattie must have gone through but clearly his purpose was to touch millions of people's lives by leaving a profound impression on them, as he did with me. He was the best little role model. If you haven't read any of Mattie's poetry, you really should:

http://www.mattieonline.com/

I can only hope such greatness and understanding will come someday from our little Doodle Bug and his journey.

Spontaneous Combustion


Every once in a while the Doodle will do something so normal that it completely surprises us and we almost forget he is autistic. He has the ability to be spontaneous! I'm so used to watching him handle situations so much differently than you might expect and with such quirkiness that when he does something like a "normal" child might, without freaking out or addressing his sensory issues, it surprises US.


Last night we were outside enjoying the backyard and the sprinklers came on.


The Doodle took one look at us and ran straight out onto the grass. He was having the best time playing in the sprinklers. He was giggling and laughing and only got mad when we made him stop because it was getting too cold for him.


Could the absence of seizures contribute to him handling things better? Or is he just getting older and more mature? I'm still scratching my head. I think with the Doodle I will always be scratching my head. He is our adorable little quirky mystery that I may never be able to figure out; and I am ok with that. I have to be.


Doodle Bug Seizure Update

P.S. the Doodle had one little head drop seizure this morning in bed...nothing earth shattering but he officially broke his 8 day seizure free streak. Sigh.

My Labor of Love



Labor day always makes me think of labor pains for some reason. And, it's because of those blood curdling screams and extreme pain which I endured that I am blessed with two precious little boys and one 52 year old big boy...see for yourself:



The Doodle is 8 days seizure free and I couldn't be more ecstatic. I'm getting braver with him and not being his complete shadow whenever he takes a step. I'm letting him run around independently more...still wearing his helmet of course; although I'm still waiting for a seizure to happen. I can't begin to tell you how much easier it is to watch him and let him play and walk by himself without holding onto his hand or the back of his shirt. It's hard being someone's safety net 24/7. Like it's not hard enough being a parent and there aren't other responsibilites freaking me out. He's much happier with the arrangement too.



Speaking of shadows, we took a walk today and he learned what his shadow was although I'm not sure he really understands it. He can point to it and he tries to run to get away from it. He also loves pointing to the grapes.