Every day is like Halloween when you have a child with Autism.
You wake up in the morning and the only thing certain is that you have no idea what your child may have in store for you. All you can do is hope, pray and use your imagination. It could be a trick or could be a treat. Although, my life these days, I feel mostly tricked.
It dawned on me that parenting a child with autism is similar to Halloween in many ways.
It could be cute. It could be funny. It could be disturbing. There's usually some dressing up involved. But most of all, it's scary.
You just never know.
My mom was telling me how much fun she thought the Doodle will have this year trick or treating.
My initial knee jerk reaction was that there is NO way I can take him trick or treating.
It would be pure chaos and madness and he wouldn't understand it anyway. If I didn't take him, would he miss it? Then the parenting guilt sets in about how unfair I'm being. He might like it for a bit. He'll like the car ride there. He might like dressing up as something. He might think it's kind of fun as long as it wasn't too crowded with too many people running around in costumes, screaming because that might be overwhelming for him and then he'd get all crazy and overstimulated and he'd turn his ability to listen completely off. I know one thing for sure, he'd love ringing the doorbells and getting things put in his pumpkin or treat bag. But I don't think he would really get it. Maybe I'm not giving him enough credit on this but I have a feeling he's going to want to go inside each house. He'll ring the door bell and if they don't come to the door fast enough, he'll get irritated and be trying the door and turning the knob and getting pretty worked up and upset that he doesn't get to go inside after all that.
And does he eat candy? No.
But I guess I will dress him in something cute for pictures and take him for the pure sport of it all and see how he does.
Having a nonverbal autistic child also lends itself to another awkward set of scenarios for when you ring the doorbell, the child typically says, "Trick or Treat"...and then "Thank You" or "Happy Halloween"...so does that mean I will have to explain at each and every house that my child is autistic and nonverbal and not really rude because he can't help it and oh how I wish he would talk someday and while I am awkwardly explaining my nightmare to a complete stranger, the Doodle will masterfully find a way to break through and run straight into their house. Then there will be chasing involved and either the person will call 911 or just smile and pity us and maybe pat me on the back as if to say it's going to be ok and slip me an extra Kit Kat.
Or I can just hand the person in charge of the candy one of these cards which explains it all.
And Jimmy will put on a brave and happy face and hopefully not be too terribly disappointed when we have to cut the trick or treating short because his little brother can't handle it and either can his basket case mother--and I'll try to explain to Jimmy how it's kind of a weird and hypocritical holiday anyway because I'm always telling him not to talk to strangers and to never take candy from a stranger. Hmph. Does no one else see the irony here?
Sure I'm guesstimating how this whole trick or treating fiasco will go down--and then at the end of the night as I'm buckling him into his car seat, fighting back tears because it didn't go so well, I will ask myself why I try to force something normal when I know better from experience? But at least I can say I gave it a shot right?
A Kiss to Build a Dream On
I have so many dreams for my children.
And I'd be thankful if just two of them came true.
For them to be happy and to know that everything is going to be alright.
Pumpkin Patch with Grammy and Papa
Grammy and Papa took the Doodle to the pumpkin patch on Wednesday with his class. I was bummed I missed it but I had to work. Grammy said he had a great time and really loved the corn maze. He was pretty excited about showing me his pumpkin when I got home and he's doing his happy shreik when I was downloading the pictures they took onto my computer earlier tonight. He kept doing the sign for MORE--
Date Night
...with Jimmy, not Jim--the other one, the little guy who I just measured and is now a 5' 4" 10 year old--soon to be turning 11 this month..
Tonight we went to a movie, Jimmy doesn't mind seeing "chick flicks" so it's almost like having a girlfriend to go to the movies with. We went and saw "Life as We Know It". We got popcorn and M&Ms and for two hours I sat in a crowded movie theater and escaped reality. No work, no phone, no deadlines, no stress, no interruptions, nothing to pick up or fix or make or clean or put away, it's what I love about going to the movies. It's dark, quiet, I don't have to talk or think or chase anyone or pull anything out of the toilet that shouldn't be in there. I get to sit, relax and just be entertained. And when it's just Jimmy and I, he is a delight; not talking back-trying to be cool or a smart mouth; just a nice boy who likes to go to the movies with mom and share popcorn on a Saturday night. The way I wish it could always be.
Tonight we went to a movie, Jimmy doesn't mind seeing "chick flicks" so it's almost like having a girlfriend to go to the movies with. We went and saw "Life as We Know It". We got popcorn and M&Ms and for two hours I sat in a crowded movie theater and escaped reality. No work, no phone, no deadlines, no stress, no interruptions, nothing to pick up or fix or make or clean or put away, it's what I love about going to the movies. It's dark, quiet, I don't have to talk or think or chase anyone or pull anything out of the toilet that shouldn't be in there. I get to sit, relax and just be entertained. And when it's just Jimmy and I, he is a delight; not talking back-trying to be cool or a smart mouth; just a nice boy who likes to go to the movies with mom and share popcorn on a Saturday night. The way I wish it could always be.
A Behavior? Really?
Haven't had much to say lately so I figure why waste the words?
It's been nothing but rainbows and sunshine around here in the land of Autism.
I'm loving that the Doodle is back in school and he too is loving it. Sometimes I wish I had a little camera attached to him so that I could watch him in action and see how he's doing and how busy he's being and what kind of chaos he's creating there in the classroom.
The teacher is so sweet most days to write about his day at school. It's a nice way to stay connected. But...
Of course you had to know there was a BUT coming. It's been too quiet and a while since I've complained on here so here goes.
I'm thinking it must be me. I must be overly sensitive and hard to get along with because otherwise why would I keep seeing this pattern of conflict every where I turn? It's me I've decided. I'm on edge and feel like I'm to a point in my life where I'm not going to tread lightly and just smile and pretend and go about my business acting as if everything is dandy. I've got too much going on then to try to pull off sweet and go out of my way to not offend someone with a reaction or something I might say.
Is sensitive palate a Behavior? Is being a baby and now a toddler and not being able to put certain things in your mouth because when you do a natural physical reaction such as gagging and throwing up occurs considered a "behavior"? Or would you say it is a physical or psychological condition or uncontrollable reaction?
I'm having a battle of wits with the Doodle's new Preschool teacher.
She's sweet and kind and nice but then comes out of left field with some demanding "behaviors" of her own. Case in point: She wants the Doodle off the "bottle". Well, a few months back I was so happy that I had found the magic training cup for him...for the past 2 1/2 years I have tried every type of sippy cup there is with him and he refused because he would almost throw up. But he didn't refuse because he was being a brat or having a bad behavior, when I tried to put the hard plastic spout with the different shape to his mouth or even a cup he would gag and throw up. Hmmmm. How can a 2 year old manipulate the situation and make himself physically sick and throw up? He obviously couldn't help his reaction. The Doodle has always been the type of kid who doesn't put weird objects in his mouth, like rocks or marbles or buttons not because he doesn't have the impulse but because they make him almost throw up. Even some foods with certain textures do this. Same thing used to happen with Jimmy. Jimmy couldn't eat certain foods because of the texture: pudding, yogurt, scrambled eggs. He'd unintentionally barf.
The Doodle has been on the new training cup with the new spout now for a couple of months now (since August 22nd), which was a HUUUUUUUGGGGGGEEEEE mileston for him-- but the Teacher doesn't like it and doesn't believe it to really be a training cup at all. Yes, Miss Teacher, oh wise one and knower of all things bottle related, it's just a bottle pretending to be a training cup. It's all a big conspiracy to keep the Doodle on a bottle until he's 16 because that is my goal for him.
Puh-lease.
So, she thinks it looks like a bottle and doesn't believe it's a training cup so she wants to get us on a PLAN to get him off of the bottle at disguised as a training cup at our home. Completely. And just have him drink out of a regular cup.
Hmmm. In a perfect non-autistic-sensitive palate-Doodle world that sounds lovely. But reality is it's not going to happen right now, nor do I want it to happen right now. He's not ready for it to happen. He just made the transition to this pretend sippy cup and he's only 4. Let him have a few good months with the training cup. And the last time I checked she was his preschool teacher and I'm still his mom. Oh yeah and I have a few good reasons I want him to remain on the training cup right now.
I've got serious and strong opinions about this. It's not a matter of choice or preference--for me, it's a matter of health and safety. With epilepsy the Doodle needs to have a certain amount of liquid each day because of his seizures. He needs and must stay hydrated; it's not optional. I know now that he drinks at least four or five 8 to 12 oz bottles of liquid a day. He is and has been also drinking out of a regular cup, a few sips here and there. But he likes to dump it out and throw it. The other issue I have from experience with my child is that he is prone to throwing up--and the last thing I want is for him to throw up his seizure medication. It's really important that we avoid the gagging and throwing up if at all possible.
So I had to let the teacher know that while I am encouraging him to drink out of a real cup and he does drink out of a real cup at HOME--I have NO PLAN to do away with the training cup she thinks is a bottle for awhile. I let her know that I felt like the Doodle has bigger fish to fry...we have more important issues to contend with then a training cup. Things like: potty training, bad behavior, seizure control, sign language, learning to drink from a straw, ABC's, 123's, sleep, oh and TALKING. Sorry, but I think talking is a little more important than him NOT drinking from a training cup.
Besides being just 4 years old and Autistic with sensory issues and epilepsy, once I told her it was a matter of health and safety that he maintain his liquids and not barf--and that I was not going to get rid of the training cup that's when she decided this was a "behavior" for him and that it needs and should be changed. So I'll throw this question out to you in the blog world--is having a physical reaction like gagging a "behavior"? Please enlighten me before I explode.
It's been nothing but rainbows and sunshine around here in the land of Autism.
I'm loving that the Doodle is back in school and he too is loving it. Sometimes I wish I had a little camera attached to him so that I could watch him in action and see how he's doing and how busy he's being and what kind of chaos he's creating there in the classroom.
The teacher is so sweet most days to write about his day at school. It's a nice way to stay connected. But...
Of course you had to know there was a BUT coming. It's been too quiet and a while since I've complained on here so here goes.
I'm thinking it must be me. I must be overly sensitive and hard to get along with because otherwise why would I keep seeing this pattern of conflict every where I turn? It's me I've decided. I'm on edge and feel like I'm to a point in my life where I'm not going to tread lightly and just smile and pretend and go about my business acting as if everything is dandy. I've got too much going on then to try to pull off sweet and go out of my way to not offend someone with a reaction or something I might say.
Is sensitive palate a Behavior? Is being a baby and now a toddler and not being able to put certain things in your mouth because when you do a natural physical reaction such as gagging and throwing up occurs considered a "behavior"? Or would you say it is a physical or psychological condition or uncontrollable reaction?
I'm having a battle of wits with the Doodle's new Preschool teacher.
She's sweet and kind and nice but then comes out of left field with some demanding "behaviors" of her own. Case in point: She wants the Doodle off the "bottle". Well, a few months back I was so happy that I had found the magic training cup for him...for the past 2 1/2 years I have tried every type of sippy cup there is with him and he refused because he would almost throw up. But he didn't refuse because he was being a brat or having a bad behavior, when I tried to put the hard plastic spout with the different shape to his mouth or even a cup he would gag and throw up. Hmmmm. How can a 2 year old manipulate the situation and make himself physically sick and throw up? He obviously couldn't help his reaction. The Doodle has always been the type of kid who doesn't put weird objects in his mouth, like rocks or marbles or buttons not because he doesn't have the impulse but because they make him almost throw up. Even some foods with certain textures do this. Same thing used to happen with Jimmy. Jimmy couldn't eat certain foods because of the texture: pudding, yogurt, scrambled eggs. He'd unintentionally barf.
The Doodle has been on the new training cup with the new spout now for a couple of months now (since August 22nd), which was a HUUUUUUUGGGGGGEEEEE mileston for him-- but the Teacher doesn't like it and doesn't believe it to really be a training cup at all. Yes, Miss Teacher, oh wise one and knower of all things bottle related, it's just a bottle pretending to be a training cup. It's all a big conspiracy to keep the Doodle on a bottle until he's 16 because that is my goal for him.
Puh-lease.
So, she thinks it looks like a bottle and doesn't believe it's a training cup so she wants to get us on a PLAN to get him off of the bottle at disguised as a training cup at our home. Completely. And just have him drink out of a regular cup.
Hmmm. In a perfect non-autistic-sensitive palate-Doodle world that sounds lovely. But reality is it's not going to happen right now, nor do I want it to happen right now. He's not ready for it to happen. He just made the transition to this pretend sippy cup and he's only 4. Let him have a few good months with the training cup. And the last time I checked she was his preschool teacher and I'm still his mom. Oh yeah and I have a few good reasons I want him to remain on the training cup right now.
I've got serious and strong opinions about this. It's not a matter of choice or preference--for me, it's a matter of health and safety. With epilepsy the Doodle needs to have a certain amount of liquid each day because of his seizures. He needs and must stay hydrated; it's not optional. I know now that he drinks at least four or five 8 to 12 oz bottles of liquid a day. He is and has been also drinking out of a regular cup, a few sips here and there. But he likes to dump it out and throw it. The other issue I have from experience with my child is that he is prone to throwing up--and the last thing I want is for him to throw up his seizure medication. It's really important that we avoid the gagging and throwing up if at all possible.
So I had to let the teacher know that while I am encouraging him to drink out of a real cup and he does drink out of a real cup at HOME--I have NO PLAN to do away with the training cup she thinks is a bottle for awhile. I let her know that I felt like the Doodle has bigger fish to fry...we have more important issues to contend with then a training cup. Things like: potty training, bad behavior, seizure control, sign language, learning to drink from a straw, ABC's, 123's, sleep, oh and TALKING. Sorry, but I think talking is a little more important than him NOT drinking from a training cup.
Besides being just 4 years old and Autistic with sensory issues and epilepsy, once I told her it was a matter of health and safety that he maintain his liquids and not barf--and that I was not going to get rid of the training cup that's when she decided this was a "behavior" for him and that it needs and should be changed. So I'll throw this question out to you in the blog world--is having a physical reaction like gagging a "behavior"? Please enlighten me before I explode.
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